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Frequently Asked Questions
What does AT-HOME PD stand for?
AT-HOME PD stands for Assessing Tele-Health Outcomes in Multiyear Extensions of Parkinson Disease Trials.
How long will my participation in the study last?
Your participation in the study will last for 2 years, with three tele-visits, and quarterly smartphone and survey assessments.
How do I enroll in the study?
AT-HOME PD is recruiting people who have completed either the STEADY-PD III or SURE-PD3 clinical trials, or are about to do so. We will contact you through a future studies registry you can sign up for at the end of each trial.
How do I schedule a tele-visit?
We are using a streamlined online scheduling system to help make booking an appointment as easy as possible! Visit our booking website, choose your time, and log in with your username and password to confirm the appointment. If you forget your password, the system will let you reset it!
I'm having trouble downloading mPower (the smartphone app). What should I do?
There are a number of resources available if you run into problems with the app download. To speak with a technical adviser, please call 508-233-AHPD or email help@athomepd.org.
Will mPower affect how long my phone battery lasts?
Maybe. There might be a slight increase in battery usage as you opt in to share your movement patterns throughout the day, which may impact your phone’s battery life. If this becomes an issue, you may wish to carry a phone charger in your bag or car to minimize the impact this has on your daily activities.
I don't have a smartphone, but I do have a tablet. Can I use mPower on that?
The app must be used on a device that is kept with you during your normal daily activities. For this reason, we recommend that the app is only used on devices that can fit in your pocket, such as a smartphone.
I have privacy concerns. Where does my mPower data go?
No identifying information will be collected through the app (name, date of birth, etc). All information is coded so that only authorized individuals can access it, and it cannot be linked to your identity. Once coded, the information is transferred electronically and stored in a secure storage service.
Can I participate in this study if I didn't participate in either STEADY-PD III or SURE-PD3?
Unfortunately not; this study is looking at the feasibility of remote follow-up for clinical trial participants, specifically those in STEADY-PD III or SURE-PD3, so if you didn't participate in either study, you aren't eligible to participate in AT-HOME PD. But you can always sign up for our future study interest registry, which will allow us to contact you about study opportunities in which you might be interested. And if you’re interested in participating separately in Fox Insight, mPower 2, or both, you can do so independently of AT-HOME PD by enrolling directly in those studies.
I want to withdraw from the AT-HOME PD study. What should I do?
If you're a current participant and you want to withdraw from the study, you can either call us or send us an email so our study coordinator can fill out the early withdrawal form with you over the phone and document the reason for your withdrawal. We'll ask you to uninstall the app from your phone, which will stop the data collection, and, if you are willing, complete an early withdrawal tele-visit with an investigator.
I keep getting notifications from the CentrePoint app requesting a sync, do I need to do anything with those?
No. The notifications are the app’s way of autosyncing. You can ignore these notifications.
How do I know if the CentrePoint Connect app is syncing?
Open the CentrePoint Connect app. A progress bar that says Syncing should automatically appear. If not, tap Manual Sync to start the progress bar.
Can I exit the CentrePoint connect app while it is syncing?
As long as the progress bar has started, you can exit the app. It will continue to sync in the background.
How do I know if the Fitbit app is syncing?
Open the Fitbit app. Click on the battery percentage in the top left corner. Tap on where it says Charge 5. On the top of this page it will say when the watch last synced.
Does powering down/shutting down my phone off disconnect the watches?
Turning your phone completely off can potentially disconnect the watches. If you have to turn your phone off or if it dies, please reach out to your coordinator once the phone is back on to ensure you are still connected.
Can I wear the watches more than the scheduled wear weeks?
Absolutely! You can wear the watches as often as you want.
I am going on vacation and do not want to wear my watches. Can I reschedule the wear week?
Yes, we can definitely reschedule wear weeks. Please reach out to your coordinator to reschedule.
The watch bands are irritating my skin, what should I do?
If you are experiencing skin irritation due to the bands, please reach out to your coordinator immediately, we make make modifications until resolved.
My mPower app is not working. What should I do?
This is common due to a widespread app issue. Please contact your coordinator if you are experiencing any trouble with the mPower app.
I keep missing the automated falls calls. What do I do?